Wednesday, November 20, 2013

a friend

Sometimes you meet people that you never thought you would but then find out you couldn't go on without them.

I have been helped, and hurt and left. But those who did, taught me lessons about life that I thought I had figured out but I was so wrong, lessons that I am forever grateful for, that have made me a better person.

I have never been a person with many friends, I am not one to open up or share my deepest secrets. I don't say I love you lightly. I am bad at saying I am sorry.

Whether it's from losing people I thought were friends, or from being a daddy's little girl without the dad. I am this person that hides their feelings. So it takes a special person to come into my life to make me want to share.

I believe in friendship, I believe in best friends, soulmates..
I couldn't imagine my life right now without my best friend, the one friend that knows every piece of my soul, my heart. All my secrets, all my wishes and dreams. This person that I can open up too, and share my day. I don't worry about being judged, they just listen and get me.
It's hard making friends and keeping friends when you have special needs children, they take so much of my time and attention. They drain me of my sanity sometimes and if you haven't been there, walked in my shoes then you just can't get it.
But my best friend does, I could never wish or want anyone better.
I love my best friend, they mean the world to me. And I will be forever grateful for the friendship we have.
"Friendship isn't about whom you have known the longest... It's about who came, and never left your side.."

Saturday, November 16, 2013

Today is the Day

Today is the day we give back to a awesome organization that put a smile on Zach's face like it does to thousands of children with life threatening medical conditions.

Although Zach has had a lot of medical problems and has spent more time in the hospital in his 4 years than most people do in their lifetimes he is doing better. There were times he faced infection, sepsis and even a transplant evaluation. He has been through feeding tubes, central lines, blood transfusions, iv nutrition, too many tests to remember or name and too many days away from just being a kid.
Make a Wish put a smile on his face when they asked what he wished for. "Mickey Mouse house" was his exact words, he loved Mickey Mouse and every time he watched a movie and the castle appeared in the previews, his face lit up. So when Make a Wish told him he was going to Disney World he was estatic!
To people who do not have special needs children or do not know what it is like to sit by your childs hospital bed day and night and just wish they could come home, you might not understand the value of Make a Wish.
But to us, to the families that have been touched by them, it is unexplainable. To get a week of no tests, no appointments, no hospitals. Just your child being a kid, and playing and laughing. It will be forever in our hearts what it was like for that week.

And some kids are not like Zach, some kids do not recover or get better or have remission. Knowing so many families that have lost their children to these life threatening medical conditions, makes me cherish Make a Wish so much more. Even those some of the children are no longer with us, their families remember the joy and time they got to spend seeing amazement in the eyes of their little ones.

So today, we give back. Today is Walk for Wishes. Teams have raised money to help grant wishes for children.

So Team SuperMan in honor of Zach will be there showing our support of this amazing organization.

You can read Zach's story from the beginning starting here..
The beginning