We went to the hospital at 6 am on Tuesday for motility testing. Motility is the way your stomach and intestines contract to move food/fluid through. We have been wondering about his for a while. They did an upper endoscopy and placed the catheter into his G-tube hole for what is called antroduodenal manometry. After surgery he was transferred to the floor where the nurses hooked him up to a computer and a special machine that put water into the catheter and slowly into his stomach and intestines to measure the contractions. Due to his anatomy and recent surgeries, the Dr could only get the catheter to go a little ways and only 4 out of the 8 probes were in his intestines. So they sent him down to radiology to make sure he didn't have any blockages, he didn't so they decided to manouver the catheter farther into his intestines with guidence from the xray. This was not pleasant to say the least, poor baby he was in so much pain. They finally got the catheter in and him back in his room and hooked up. He was on the machine for about 2 hours and then gave some medicine to stimulate contractions in the stomach, then about an hour later they gave medicine to stimulate contractions in the intestines.
The rest of the night was horrible, he woke up screaming in pain about 7 times..pretty much every hour and then about 6 am he started throwing up and threw up about 9-10 times before 7 am. The Dr came in about 7:30 and decided to cut off the test, Zach was still in a lot of pain and needed a break. Luckily they did get some readings from the machine, unfortunately not anything good. Apparently, his stomach has contractions but in no order and his intestines have retrograde contractions, which mean they go up instead of down.
The doctors discussed him and decided he needs a few more tests, right now they do not know what to make out of his results so he is having another manometry test done on the 21st where they will place a smaller catheter through his J-tube hole and deeper into his small intestines to measure farther down. He also needs another barium contrast study done and possibly a colonscopy with biopsies to check for eosiniphils in his lower intestines.
So unfortunately that means more hospital stays and no treatment for now until they can figure out this mess.