Zach was supposed to have his hydrogen breath test on Friday morning, we got to the hospital at 7 am and he was doing fine. He was supposed to drink a 2 oz bottle of sugar water and then get breath readings every 15 minutes for 3 hours. However, he would not drink the bottle and the nurses tried placing a NG tube 5 times with no sucess so he was sent home. They did notice however since Tuesday when he saw his doctor here, he had lost a pound. He hasn't been eating hardly anything including his bottles of Elecare. So around lunch time he was admitted to Brenner Children's Hospital for observation and testing.
When we got here, he was only 20.8 lbs and on Tuesday he was 22 lbs. He had bloodwork done and we are waiting on those results. They are also counting every calorie he takes in to keep up with him losing weight. Today he was only 20.4 lbs so we are waiting on the on call GI doc to come by and talk to us and develop a plan. I know on Monday he will have his hydrogen breath test by the GI team. He might end up with a G tube for feeding but we are waiting to hear.