Thursday, July 15, 2010


The results finally came back from the pancreatic testing and enzymes when Zach had his biopsy. His pancreas is fine but his enzyme testing came back with him being low in sucrase and maltase, which are the two enzymes that break down sugars and starches in the digestive system. So the doctor recommended having a hydrogen breath test done, which will take place on Friday July 23rd at Brenner's. If that comes back positive it will mean Zach has another very rare disorder called CSID or congenital sucrase-isomaltase defiancy. Only 1200 people are accounted for having this disorder. It means he can not process any sugar or starches so his diet will be even more strict.
To top it off he has only gained 1 pound in the past 9 months, which is good that he finally put on that 1 pound of weight but it's only from him drinking his elecare formula and it only happened over the past 2 months. I think he is getting closer to having to have a feeding tube placed because he is not getting enough nutrients to grow. For now, that's all we know, wait on 1 more test and go from there.

No comments:

Post a Comment