We started our sunday morning out with Zach throwing up all over the kitchen, so that was not good. Unfortunatly, it didn't end there....he has thrown up every morning since Sunday and yesterday when his nurse came to check him and change his central line dressing, she weighed him and he lost 1 lb and 1 oz. Not good at all.
I don't really think it is all do the vomiting though, because he is not throwing up a lot of formula...just stomach stuff. I just don't think his body is absorbing enough of the formula to add the calories. So I talked with the GI doctor's nurse today and they are going to increase his TPN...not sure if that means more hours or higher amount. We get our TPN delivery tomorrow so I assume I will find out then.
He goes back for his follow up appt with Dr Hill, his GI on Monday so hopefully they will have some test results from the autonomic testing and some news on Kennedy Krieger/Johns Hopkins.