Wednesday, May 15, 2013

Updated Us... very long overdue

 I am a stay at home mom to two very special boys, have been married to my husband for 10 years this November. Our family has gone through a lot these past couple of years with our boys and things are still coming into perspective. This blog is just a little glimpse into our everyday lives raising 2 special needs boys and also helping bring awareness to many rare disorders and very special kids.
Now about us…

Thing 1 (Lucas)- is a new 6 year old going on 18, who knows everything and always has to have the last word. He has been diagnosed with ADHD combined type, oral and developmental dyspraxia, fine motor and gross motor delays, phonological processing disorder, dyslexia, dysgraphia and receives speech, OT and PT.
He was born at 32 weeks via emergency c-section, he was in distress, having the cord wrapped around his neck preventing blood supply to his brain. We are very lucky to have him, he would not have made it full term and we are very grateful for our doctors for finding out.
Thing 1 is very smart, very creative, and his imagination is far greater than I could imagine. He is truly one of a kind.

 Thing 2 (Zach)- is our 4 year old love muffin, he is a momma’s boy to every extent. He spent a lot of his early years in and out of hospitals trying to survive. He has been through feeding tubes, central lines, iv nutrition, special formulas, tests, tests and more tests, and more surgeries than I can list. But through it all, he remained a strong willed, happy little boy who loves Superman.
No one really knows a diagnosis for him, we know he has Eosiniphillic Esophagitis, food allergies, and some autonomic dysfunctions (mild- mainly sensitive to heat and flushing when over stimulated)

For those that have followed our story from day one- thank you from the bottom of our hearts believing in us and keeping us in your prayers. We have made it, our boys are doing good, our family is good, and the past is behind us. Our boys are thriving and growing.
Through all of the crazy mess over the past year we have kept our faith in God and knew he would bring us through and we will continue to walk the path he has for us.

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